To recognize Rare Disease Day 2018, AVROBIO created an initiative to raise awareness for Fabry disease. We invited participants to deliver a message of hope to the rare disease community through our website and donated $10,000 to Fabry International Network. Some of the submissions are below.
When you or a loved one has a rare disease, hope is bigger than just a 4-letter wordJimNebraska
I often thought I was alone in all this. But I'm not. None of us are alone.SusanBoston
I support research for rare diseases!HarryLondon
Refusing to stop when we're at our lowest. Looking for answers in research and science. That's what hope is.LeslieIndiana
When my son was diagnosed with a rare disease my wife and I didn't know what to do. But being there for each other and finding a community of people affected in similar ways have strengthened our resolve as people, and as parents.FrankNorth Carolina
Our cause is life. Our mission statement is hope.SarahBerlin
When your child is diagnosed with a rare disease like out was we felt helpless. But the support that we got from our healthcare team, family, friends and rare disease community gave us hope that we would make it.RichardSan Antonio
About Fabry International Network (FIN)
The mission of FIN is to be a global, independent network of Fabry patient organizations whose purpose is to collaborate, communicate, and promote best practices to support those affected by Fabry disease. FIN is connected in over 45 countries and membership is free and open to any national patient organization in which patients with Fabry disease are represented.
To learn more please visit fabrynetwork.org